Illness as a driver in creativity

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Sometimes I’m asked if I’ve always considered myself a writer. I giggle to myself when I hear that question. Writing used to make my stomach hurt. I did, in fact, do plenty of writing. I wrote essays,  reports, and even a Masters’ thesis. It wasn’t until I got sick, however, that I began to view writing as a friend; as a support; and as an expression of my experience.

When I was in the hospital having my stem-cell transplant  an idea for a children’s story came to me one night and begged to be written.  It was about a pig who was asked to go on a quest. He didn’t really want to go, but the quest asked for him and he had to rise to the occasion. This  story proved to be a useful framework for my experience.  It wasn’t a literary masterpiece, but it was a helpful companion that allowed me to construct my experience in a way that gave me energy and hope.

Sometimes I think that the creative bug bit because I finally had something to write about; I had ‘worthwhile’ subject matter. But then in my travels today, I came across a paper about textile artists with long-term health problems discussing the creative process. I haven’t read the whole thing yet, but one sentence caught my eye in the summary.

…several participants reported that illness did not only inspire artwork through distress and loss, but through sharpening perceptions, heightening emotional sensitivity and confronting them with the deeper issues of life.

These words leapt out at me as they resonated with my experience perfectly. When I was really sick, I started noticing things more; noticing  and then wanting to capture them. I was seeing differently. I was also asking different questions than before, and wrangled with those questions in my writing.

I couldn’t really talk directly about how I was feeling at the time because I believed, unconsciously, that to do so might unravel me completely. But the writing allowed these emotions to express themselves in a back door manner.

It feels as if my illness turned on a switch that was just waiting to be activated. Perhaps all of us have a creative switch waiting to be activated under just the right circumstances. For some it will be illness, trauma or loss for others it will be love or joy or just simply change. I like to think that every one of us has this potential for creativity of some sort that is lying in wait.

What’s your switch?

Sam

Belly Laugh Friday December 14, 2012

As most of you know, my strange illness has given me a belly that makes me look about seven months pregnant. After so many years I have been able to find the humour both in the queries and the responses I give to the queries.  Sometimes I actually look forward to bizarre responses because they make such good stories. Belly-laugh Fridays is my chance to share these humorous tidbits with all of you. Enjoy.

Sam

sphere-glass

As I’ve mentioned before,  I often  pretend to be pregnant when I’m out in public. No explanations needed this way. No  horror or embarrassment with people I will never see again. If I”m out and about the whole day in public, it becomes easy to start thinking like a pregnant woman.

Like the time  I had spent my day travelling around Toronto by public transit. I got on my last streetcar for the day. It was packed and I was exhausted. We were all squished together like the proverbial sardines. In front of where I was standing, two youngish men sat, bulging large packages out into my space and blatantly ignoring me. I tried to push my belly out further, but they either did not see me or pretended not to see me.

I glared at them thinking, “Weren’t you taught to let a preganant woman have your seat?”

I fortunately came to my senses before anything actually came out of my mouth. What was I thinking?

Belly Laugh Friday, November 9, 2012

As most of you know, my strange illness has given me a belly that makes me look about seven months pregnant. After so many years I have been able to find the humour both in the queries and the responses I give to the queries.  Sometimes I actually look forward to bizarre responses because they make such good stories. Belly-laugh Fridays is my chance to share these humorous tidbits with all of you. Enjoy.

Sam

 

 

 

“Are you pregnant?” 7 year old Jason asks, looking wonderingly at my belly.

“No honey. I look pregnant. But I’m not. I just have a big liver.”

Jason considers.

“Polar bears must really love you” he says with a big grin.

“Why is that?”

“Because polar bears really like to eat liver.” He pronounces, his grin overtaking his face.

I was in love.

“Well, I’ll watch out for those polar bears,” I promised, grinning right back at him.

Belly Laugh Friday, November 2, 2012

As most of you know, my strange illness has given me a belly that makes me look about seven months pregnant. After so many years I have been able to find the humour both in the queries and the responses I give to the queries.  Sometimes I actually look forward to bizarre responses because they make such good stories. Belly-laugh Fridays is my chance to share these humorous tidbits with all of you. Enjoy.

Sam

 

 

“Can you take us to the Chelsea Market?” I say, out of breath from running. I’m trying to convince this New York cabbie to actually take us somewhere. My sisters, mother and myself are in New York  to celebrate some significant family birthdays. We have been unsuccessfully trying to hail a cab for the last fifteen minutes. I spot this one across the street at a hotel and dash over to it before it disappears.

The driver looks me over and says, “I’m not really supposed to do this. I could lose my license. I’m from Jersey.”

I try to look somewhat pathetic and very pregnant and flash him a smile. “Oh we’ve been trying for so long to get a cab, but we haven’t been able to get one.”

He looks me over again and makes a decision. “Okay, get in.”

I point out my sisters and mother who are waiting for the light to change so they can cross.

He says, “That’s okay,” and then proceeds to do a U turn across six lanes of traffic to pull up smoothly in front of my family.

They all pile in and thank him profusely (being the Canadians that we are). He starts driving and then says,

“You know I really shouldn’t be doing this. I’m from Jersey. I could lose my license. But in her condition (he jerks his thumb at me) I thought I’d better take you.”

We all smile and thank him again and continue smiling to ourselves.

As he drops us off, a tired and harried looking family with a small child look relieved to see him.

“Sorry,” he says without any real remorse, “Can’t take you,” and drives away, tires squealing.

After that I am the designated procurer of cabs.

Belly Laugh Friday

As most of you know, my strange illness has given me a belly that makes me look about seven months pregnant. After so many years I have been able to find the humour both in the queries and the responses I give to the queries.  Sometimes I actually look forward to bizarre responses because they make such good stories. Belly-laugh Fridays is my chance to share these humorous tidbits with all of you. Enjoy.

Sam

For a while there was a restaurant in Chinatown in Toronto that I was visiting every week with the same group of people. We would see the same waiters every week and they became familiar with us.

One week, a waiter suddenly noticed my belly and began to make a big fuss over me. Before I knew it he was speaking babytalk (Cantonese babytalk mind you) to my belly. He started having a conversation with my non-existent unborn baby.

I frantically gestured “no” with my hands, but he was pretty absorbed in his conversation. One of the Cantonese-speaking members of my group finally intervened to tell him the truth of my belly.  The look of shock and horror that appeared on his face would have been comical if the poor man had not felt so terrible.

I kept reassuring him that it was fine, but of course couldn’t use my usual words of reassurance. My friend calmed him down best she could, but I think he wasn’t entirely convinced that I wasn’t making the whole thing up.

Ultra Sounds Monday, Sept 24, 2012

Happy Monday all,

This week I am happy to present another painting by Gina Duque. I hope you all went to take a look at her website after the last submission. If not, please do take a look at the many wonderful ways in which she sees the world.

Enjoy!

Sam

 

 

In her own words:

About the Artist

Whether it’s through prints like ‘Calypso’ or paintings like ‘Eukarya’, the essence of my work stems from creating mystical images inspired by cellular biology, the concept of healing and my interest in exploring the spiritual connection between the body and mind. I am currently using images derived from medical imaging technology to portray cells, tissues and systems of the human body.

During the last two and a half years of my cancer treatment, creating artworks has become a therapeutic and fulfilling process, eventually evolving into a spiritual and mindful practice.

Gina Duque is an emerging artist currently attending the University of Western Ontario in London, Ontario for her Bachelor of Fine Arts Honours Degree. Originally from Cali, Colombia, she immigrated to Canada with her mother at the age of eleven to Walkerton, Ontario.

 

About ‘Rebirth ‘

‘Rebirth’ is an abstract painting inspired by the Phoenix, a mythical creature that ignites on fire at the end of its life cycle and arises from its ashes to be reborn again. This is a powerful piece that for me signifies closing a painful, yet wisdom filled period in my life where I’ve gained so many life lessons not only from this experience but also from the many courageous, inspiring cancer patients I have met along the way. Now taking the ashes of my last chapter to construct another, I begin anew feeling stronger than ever with a renewed perspective on life that has truly enabled me to live life to its fullest.

 

Ultra Sounds Monday, July 9, 2012

Hello everyone,

My apologies for the quietness of the blog these days. It’s these sluggish summer days. You could peel me off the couch when it’s as hot as it has been lately in Southern Ontario. Once the cooler weather arrives, I will be back in full swing.

Today’s submission comes from Kelly Thorarinson,a lovely woman I met at an Art for Cancer Workshop. I love the colours and texture of this painting as well as the title and what it represents. Do check out Kelly’s other work and her blog.

In her own words:

Re: Resolving the Screening dilemma

I worked on this piece through Art for Cancer Foundation’s 5 week workshop.  I call it resolving the screening dilemma as that is actually part of a typewritten piece that is visible under all the colour and texture…. a newspaper clipping. That is how I first decided to name this piece, but really there is so much more.  Those words resonate with me because there is complexity to cancer treatment.  Even as a stage 1 breast cancer patient where treatment is fairly straightforward, there are still many questions.  One, of which, is about screening as the very screening methods and treatment for breast cancer can also cause cancer.  Sure is a dilemma.  The other aspect of the title is that in doing art I was able to solve the dilemmas of cancer by giving them a voice and hours of escape through art. More of my art can be found at www.abelcreation.com and I write a blog at www.chrysalis2butterflywings.blogspot.com

 

 

The Screening Dilemma

by Kelly Thorarinson

Ultra Sounds Monday, June 25, 2012

Good morning all,

Since I have a little pull with the moderator of this blog, I decided to post one of my own poems for today’s submission.

I wrote this poem after stumbling across an old picture of myself on a canoe trip before becoming ill.  I was blinded by the memory of once being strong enough to carry a heavy backpack along a three kilometre portage. I had forgotten that once upon a time, I wasn’t sick. Here was proof. The poem reflects the mixture of emotions I felt in response to this picture.

Enjoy

Sam

 

 

 

The Girl with the Backpack

 

The picture is a little fuzzy

She didn’t want to be photographed

The large backpack was heavy

The long portage waited

“Just take the picture already”

Tall and strong

Long hair pulled back

With the wisps blowing in the breeze

She was ready to hack it off

So heavy and hot

Not knowing that a few years later

Chemotherapy would do the job for her.

 

She couldn’t know this would be the last trip

That her changing body wouldn’t allow her to go

to that place of deep quiet and true darkness anymore

She was a bit crabby that day

Maybe it was that time of the month

The chemotherapy claimed that too

Something she never thought she would miss

You want to tell that girl to shape up

To stop whining about the heat and mosquitoes

To pay close attention

So that she could replay the details later

 

I would like to be her again

Just for a day

To remember what was:

the smell of green

The cool silkiness of the water on bare skin

The clarity of the stars at night

The feel of paddle in hand

Traveling away and away

 

Yet for all of her physical vitality

She was a frail creature on the inside

Jell-O

She was easily led away from herself

She writhed with self-consciousness

Avoided the hard things

And felt herself always on shifting sands.

She didn’t know how to be her.

 

She is stronger now

With fortitude she never imagined

Grounded like a tree

Yes she would like to hide in her old self a while

Trade up for a healthy body

But would not sacrifice the hard-earned sturdiness

that helps her now come back from the woods and face the future.

Tuesdays at the chemo unit, June 19, 2012

Today my husband, Daniel, drove me in for my treatment. While I love to have the time with him, there is always a bit of trepidation about these trips.

You see, I actually like to go alone to my appointments. I feel independent and free to do whatever I need to do. I can chat with people or be completely quiet and alone. If I’m tired I can just sit and nap. I can be very focused on dealing with whatever that day brings.

When you bring someone, all of a sudden you have a guest that needs looking after.  I know, they are there to support me, but the reality is that my “support” person, can’t stand waiting around hospital waiting rooms. He is not as used to the waiting as I am. He wants to be outside.  He gets fidgety, which drives me crazy.

We do have our strategies. Daniel goes for walks during the long wait times. If it’s a tired day and I need the elevator, he takes the stairs. He paces around the long hallways observing the people there. It works out okay.

Once I’m out of the hospital I’m a different person. I don’t have that same need to be alone and focused. I feel more social and more able to think beyond my own needs. Having Daniel there now seems festive. It seems that I’m only curmudgeonly in the hospital.

Sam

Ultra Sounds Monday, June 18, 2012

Today I am pleased to post some more poems by Margery Hauser.  Once again in her own words:

In 1999 I was diagnosed with cervical cancer and had surgery that, at the time, we all thought had taken care of the problem.  However, it came back for a return engagement in 2008 and again in 2010, now taking up residence in lymph nodes and moving its way up from my pelvis into my abdomen. The poems below were written in response to various experiences during diagnosis and treatment.

Today’s poems are quite different from each other.

The first, Chemo Blues, is “definitely irreverent, but it reflects my personal feeling that finding the humor in a difficult situation is a way to maintain some balance”

“How do I tell you is really an expression of anger and frustration in reaction to all the people who told me how much they admired my strength and positive attitude.  Their words, undoubtedly spoken with the best of intentions, made it difficult for me to share my fear and sadness honestly.”

 

Until next time…

Sam

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Chemo Blues

 

Oh the first line of the blues is always sung a second time (oh yeah?) 
 First line of the blues is always sung a second time (kinda smooth!) 
 So by the time you get to the third line you’ve had time to think up a rhyme.

 Richard Stilgoe, Poppa’s Blues, Starlight Express

 

I’ve got those paclitaxel topotecan chemo blues.

Oh yes, those paclitaxel topotecan chemo blues.

It’s made my thumbs a little numb,  my toes are tingling in my shoes.

 

Treatment’s made me bald, ain’t got no eyebrows or eyelashes.

Yeah, treatment’s made me bald, ain’t got no eyebrows or eyelashes.

The upside is it’s cold and chemo gives me cozy, warm hot flashes.

 

My legs ache from the taxol and the topo makes my white cells disappear.

Oh, my legs ache from the taxol and the topo makes my white cells disappear.

On the other hand I haven’t had to shave my legs in almost half a year.

 

These drugs make me so tired, I just want to sit here staring at TV.

I said, these drugs make me so tired, I just want to sit here staring at TV.

It’s the best excuse for doing absolutely nothing, lazy as can be.

 

Some folks say it’s bad taste to joke when cancer’s got you by the nodes.

I hear some folks say it’s bad taste to joke when cancer’s got you by the nodes.

But I think all of us on this journey find our own kinds of roads.

 


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How do I tell you

 

it’s hard to walk upright

with the weight of your admiration

pressing on my shoulders

 

too difficult to breathe

swaddled in your blanket of love

 

impossible to swim

through your riptide of caring

 

Your heartstrings tentacle tight

around me     I am confined

constrained   contained   restrained

 

Image   icon

idol    ideal

I dream Pinocchio dreams

of being real