Ultra Sounds Monday, October 1, 2012

Good day all and happy October!

Today I offer you another couple of gems from Viola Moriarty.  I love Viola’s paintings and I love Viola even though I have never met her in person. I connect to the colour and lines and the feeling of the painting and they  seem to me to be portholes into her personality (as much as I know her so far). You should go right this minute and check out her collection at http://www.violamoriarty.com/ (and notice what a beautiful bald head she has – I drool in envy  - mine wasn’t so pretty).

Enjoy

Sam

 

In her own words:

“Physicists tell us that the very act of seeing changes us, and changes the object of our perception. I paint
solely and directly from life largely because of this energetic exchange between the seer and the seen.
Creative process is perceiving information and deciding how to personally engage that information; it is
this process that most interests me. Painting is also hard work. It requires a particular kind of focus and
energy. When I step to the easel, I feel I was born for this work. All my liabilities—my tenacity, boldness,
tender heart, passion and insatiable curiosity–become my assets. When I am painting, I feel like myself.

Nature is my sweetest and most demanding teacher, and it is to her that I am most grateful.”

Viola Moriarty

 

Nicole P

By Viola Moriarty

 

 

 

Things Happen

By Viola Moriarty

Tuesdays at the chemo unit, Wedneday, September 12, 2012

 

 

 

Yesterday was a great day at the chemo unit. I had a nurse I’d never had before who was so skilled I barely felt the needle go in. Sigh. Happiness is a good nurse.

Then, for the icing on the cake, a gaggle of my favourite nurses were clustered in the areas around me. I felt like the most popular kid in school with the nurses all smiling and calling, “Hey Sam, how’s it going?”, “See you later Sam.” “Sammy!” (there’s one nurse, who, inexplicably calls me Sammy – it’s quite endearing actually)

I felt enveloped by this lovely group of men and women who take such good care of me and who know me and who make the chemo unit as pleasant a place as possible to be. They all know my name is not Gayle, even though that’s the name on the card. They all know I’m not pregnant. They are not gooey sweet, they are just skilled,  good hearted and light-hearted and love to laugh. And they all care.

 

Aren’t I lucky?

 

Sam

Belly Laugh Friday, September 7, 2012

As most of you know, my strange illness has resulted in a belly that looks about seven months pregnant. In the early days, this was  quite emotionally tough. While the belly still presents challenges now, especially in the realm of clothes shopping, I find much more humour both in the queries and the responses I give to the queries.

Sometimes I actually look forward to bizarre responses because they make such good stories.  I have now collected so many funny stories that I would like to begin sharing them with you on a regular basis. Some are one-liners and others are longer tales. Their purpose is not to make fun of the people who make the remarks, but simply to make fun of the whole situation. I hope you get as much a kick out of them as I do.

“How far along are you ma’m?” the ticket agent at the airport in Mexico asks me.

“Oh, about seven months,” I say cagily, sticking my belly out a little further,  hoping this will get us seats in the bulkhead.

“Seven months, ma’m? I’m afraid we cannot let you fly.”

I stand up straight and say “Actually, I’m not pregnant.”

His look of disbelief is clear. “But you just told me you were pregnant.”

“Well, I look pregnant, but it’s really my liver.”

He looks at me still suspiciously.

“Look, it says so on my medic-alert bracelet.”

He looks at the bracelet that says, “Amyloidosis with hepatomology,” shakes his head and at me and then stamps our passports with extra force. He gives us our boarding passes, but will not talk to us any further.

Gone Fishin’

Well my friends,

The sluggish summer days are about to slow down to a full stop as I depart for vacation.

No, no, please don’t cry.  Really. Don’t make this harder than it is. I will be back.

In the meantime, I found a very entertaining blog that you might want to check out (but don’t get too committed – I need you to come back). The blog is called “Let’s Radiate Don” and it had me laughing.

I will leave you with one other little gem. I just rediscovered a yiddish saying that my grandma taught me. She was very sophisticated, but would throw in a smattering of yiddish from time to time.

The saying is this: ”Hak mir nisht ein tshaynik”

Which, as I understand it, translates to mean, “Don’t knock my tea kettle.”

Isn’t that a wonderfully satisfying expression to have in your back pocket? Just think, the next time someone tells you that you caused your own cancer because of your unresolved anger issues you can just reply, “Hak mir nisht ein tshaynik.”

Until the next time,

Sam

 

Ultra Sounds Monday, June 25, 2012

Good morning all,

Since I have a little pull with the moderator of this blog, I decided to post one of my own poems for today’s submission.

I wrote this poem after stumbling across an old picture of myself on a canoe trip before becoming ill.  I was blinded by the memory of once being strong enough to carry a heavy backpack along a three kilometre portage. I had forgotten that once upon a time, I wasn’t sick. Here was proof. The poem reflects the mixture of emotions I felt in response to this picture.

Enjoy

Sam

 

 

 

The Girl with the Backpack

 

The picture is a little fuzzy

She didn’t want to be photographed

The large backpack was heavy

The long portage waited

“Just take the picture already”

Tall and strong

Long hair pulled back

With the wisps blowing in the breeze

She was ready to hack it off

So heavy and hot

Not knowing that a few years later

Chemotherapy would do the job for her.

 

She couldn’t know this would be the last trip

That her changing body wouldn’t allow her to go

to that place of deep quiet and true darkness anymore

She was a bit crabby that day

Maybe it was that time of the month

The chemotherapy claimed that too

Something she never thought she would miss

You want to tell that girl to shape up

To stop whining about the heat and mosquitoes

To pay close attention

So that she could replay the details later

 

I would like to be her again

Just for a day

To remember what was:

the smell of green

The cool silkiness of the water on bare skin

The clarity of the stars at night

The feel of paddle in hand

Traveling away and away

 

Yet for all of her physical vitality

She was a frail creature on the inside

Jell-O

She was easily led away from herself

She writhed with self-consciousness

Avoided the hard things

And felt herself always on shifting sands.

She didn’t know how to be her.

 

She is stronger now

With fortitude she never imagined

Grounded like a tree

Yes she would like to hide in her old self a while

Trade up for a healthy body

But would not sacrifice the hard-earned sturdiness

that helps her now come back from the woods and face the future.

Tuesdays at the chemo unit, June 19, 2012

Today my husband, Daniel, drove me in for my treatment. While I love to have the time with him, there is always a bit of trepidation about these trips.

You see, I actually like to go alone to my appointments. I feel independent and free to do whatever I need to do. I can chat with people or be completely quiet and alone. If I’m tired I can just sit and nap. I can be very focused on dealing with whatever that day brings.

When you bring someone, all of a sudden you have a guest that needs looking after.  I know, they are there to support me, but the reality is that my “support” person, can’t stand waiting around hospital waiting rooms. He is not as used to the waiting as I am. He wants to be outside.  He gets fidgety, which drives me crazy.

We do have our strategies. Daniel goes for walks during the long wait times. If it’s a tired day and I need the elevator, he takes the stairs. He paces around the long hallways observing the people there. It works out okay.

Once I’m out of the hospital I’m a different person. I don’t have that same need to be alone and focused. I feel more social and more able to think beyond my own needs. Having Daniel there now seems festive. It seems that I’m only curmudgeonly in the hospital.

Sam

Ultra Sounds Monday, June 18, 2012

Today I am pleased to post some more poems by Margery Hauser.  Once again in her own words:

In 1999 I was diagnosed with cervical cancer and had surgery that, at the time, we all thought had taken care of the problem.  However, it came back for a return engagement in 2008 and again in 2010, now taking up residence in lymph nodes and moving its way up from my pelvis into my abdomen. The poems below were written in response to various experiences during diagnosis and treatment.

Today’s poems are quite different from each other.

The first, Chemo Blues, is “definitely irreverent, but it reflects my personal feeling that finding the humor in a difficult situation is a way to maintain some balance”

“How do I tell you is really an expression of anger and frustration in reaction to all the people who told me how much they admired my strength and positive attitude.  Their words, undoubtedly spoken with the best of intentions, made it difficult for me to share my fear and sadness honestly.”

 

Until next time…

Sam

_____________________________________________________

Chemo Blues

 

Oh the first line of the blues is always sung a second time (oh yeah?) 
 First line of the blues is always sung a second time (kinda smooth!) 
 So by the time you get to the third line you’ve had time to think up a rhyme.

 Richard Stilgoe, Poppa’s Blues, Starlight Express

 

I’ve got those paclitaxel topotecan chemo blues.

Oh yes, those paclitaxel topotecan chemo blues.

It’s made my thumbs a little numb,  my toes are tingling in my shoes.

 

Treatment’s made me bald, ain’t got no eyebrows or eyelashes.

Yeah, treatment’s made me bald, ain’t got no eyebrows or eyelashes.

The upside is it’s cold and chemo gives me cozy, warm hot flashes.

 

My legs ache from the taxol and the topo makes my white cells disappear.

Oh, my legs ache from the taxol and the topo makes my white cells disappear.

On the other hand I haven’t had to shave my legs in almost half a year.

 

These drugs make me so tired, I just want to sit here staring at TV.

I said, these drugs make me so tired, I just want to sit here staring at TV.

It’s the best excuse for doing absolutely nothing, lazy as can be.

 

Some folks say it’s bad taste to joke when cancer’s got you by the nodes.

I hear some folks say it’s bad taste to joke when cancer’s got you by the nodes.

But I think all of us on this journey find our own kinds of roads.

 


__________________________________________________

How do I tell you

 

it’s hard to walk upright

with the weight of your admiration

pressing on my shoulders

 

too difficult to breathe

swaddled in your blanket of love

 

impossible to swim

through your riptide of caring

 

Your heartstrings tentacle tight

around me     I am confined

constrained   contained   restrained

 

Image   icon

idol    ideal

I dream Pinocchio dreams

of being real

Telling our story

Recently I have reconnected with some old friends and I’ve been reflecting on how we tell our stories. How do you sum up your life for the past twenty years? If illness has dominated, it sounds rather dreary to say “Yeah, since we last saw each other I’ve spent most of my time in hospitals. How are you?”

As I compose the emails to these friends I realize that I have instinctively tried to to summarize what my illness has meant to me. Not the gory details, but how it has shaped my life – both good and bad.

Similarly, when I first tell new acquaintances about my illness, I’m less inclined to give lots of detail.  Frankly, I’m bored with the details, but I’m constantly exploring what it means to live with a disease and how it shapes a life (at least my life).

How do we construct our lives when major illness influences every aspect of what we do? How do we then construct the story of that life to share with others?

Creative expression gives many people a way to tell their story in a way that can capture, at a visceral level, what the illness has meant to them. I’m honoured that so many people have chosen to share their stories through this blog and if you are newer to the site, I encourage you to go back and look at the archives.

Looking forward to many future stories.

Sam

Fun as incentive

This weekend is the “Ride for the Cure” to raise funds for Princess Margaret Hospital in Toronto. Princess Margaret is my home away from home and I’m pleased to support my friend Paul Shilton who will be riding. If you want to sponsor him, you can still do so via the link down the left hand side of the page.

 

And now for something completely different……

These videos have nothing to do with cancer and everything to do with creativity. Volkswagen sponsored a contest where they asked participants to develop  fun ways to change behaviour. Here are some of the outcomes.

 

So how could we apply the fun theory in hospitals? Any ideas out there?

Sam